Photo: tiktok
A mother of three is “devastated” to share that her youngest son has died after a years-long battle with a genetic neurodegenerative disease.
Whitney Frost posted aheartbreaking video to her TikTok accounton New Year’s Day to announce the death of her son Harrison, who died that afternoon at the age of 6.
Harrison suffered from Infantile Neuroaxonal Dystrophy, or INAD, a disease which effects motor skills and voluntary muscle function. Life expectancy for children who have INAD is usually 8 to 12 years of age.
Harrison’s older sister Riley, 8, has also been diagnosed with INAD.
The video showed photos of Harrison with various members of his family, along with captions explaining that “he went quickly” and “did not suffer.”
“We are devastated. But glad he’s no longer in pain,” the captions continued.
Never miss a story — sign up forPEOPLE’s free weekly newsletterto get the biggest news of the week delivered to your inbox every Friday.
RELATED VIDEO: Nick Cannon Opens Up About Losing His 5-Month-Old Son Zen to Cancer: “My Heart Is Shattered”
Frost, who is also mom to eldest child Natalie, 17,postedshortly before Harrison’s death to report that he was doing well after having recently overcome a urinary tract infection that caused sepsis.
On Monday, two days after her youngest child’s passing, Frostagain posted to TikTokto update that Riley “is not doing that great,” with a gastrointestinal bleed, fever, and other complications.
A GoFundMe page established to “help the Frost family” explained that both children were “born after easy pregnancies, no complications and no indication that anything was wrong.”
The page description went on to say that “in 2016, Riley was diagnosed with INAD after losing her ability to walk, talk, or crawl. Because INAD is genetic, Harrison was tested and had just turned 1 when we got his diagnosis, and he wasn’t even showing symptoms yet. It was the worst day ever — finding out that the 2 youngest children had INAD.”
As of Monday night, the crowdfunding page has raised almost $17,000 of a $50,000 goal.
source: people.com
